PHOTOS: People Shame Parents For Keeping Baby With Severe Facial Deformity
The parents of the baby born with Treacher Collins syndrome – the same condition her father has – are harshly criticized by their neighbour...
https://everyhournaija.blogspot.com/2015/04/photos-people-shame-parents-for-keeping.html
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Treacher Collins Syndrome affects one in 50,000 babies and is characterised by craniofacial deformities such as the absence of cheekbones and deafness. Alice has a milder form of TC, with full cheekbones and only a slight gap below her eyes, which makes them droop slightly.
The one-year-old constantly has a running nose, but her chin is not receded, as in classic cases of the syndrome.
Her high palate makes feeding difficult and time consuming, leaving Alice feeling hungry most of the time. And she also has malformed ears, typical of the condition, with no hole into the inner ear – meaning she is forced to wear a bone-anchored hearing aid. Despite the taunts Mr Moore said: “I never wished for Alice not to have TC.
Even though I grew up with all the problems and complications it really didn’t bother me either way whether she had it or not. We all knew if she had it that she’d be surrounded with people who loved her whatever. There’s nothing on this planet anywhere near as special as Alice. She’s changed my life. There’s no doubt about it. She’s her dad’s little girl and I will tell her she is beautiful every day.”
Mrs Moore, 36, who has three daughters aged 10, 13 and 15 from a previous relationship, said: “We didn’t go into this with our eyes closed. We had to go through a year and a half of genetic counselling before we even decided to go ahead with trying for a baby. We knew there was no guarantee how bad the TC would be, if the baby would have it at all. It could have been as minor as a slight hearing problem, to being born with no face whatsoever. It was 50/50. Ultimately, we didn’t care if our baby had TC, we fell in love with her immediately.”
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The parents of the baby born with Treacher Collins syndrome – the same condition her father has – are harshly criticized by their neighbours for dooming the girl into a life of suffering.
Simon Moore was born with a severe facial disfigurement and as a result was bullied throughout his life. As a boy he spent much of his childhood hiding indoors and even now he had to deal with strangers pointing and laughing at him. But probably the worst insult of his life was when neighbours branded him and his wife Vicky ‘cruel’ for not to abort their daughter Alice when it turned out she had the same condition.
Treacher Collins Syndrome affects one in 50,000 babies and is characterised by craniofacial deformities such as the absence of cheekbones and deafness. Alice has a milder form of TC, with full cheekbones and only a slight gap below her eyes, which makes them droop slightly.
The one-year-old constantly has a running nose, but her chin is not receded, as in classic cases of the syndrome.
Her high palate makes feeding difficult and time consuming, leaving Alice feeling hungry most of the time. And she also has malformed ears, typical of the condition, with no hole into the inner ear – meaning she is forced to wear a bone-anchored hearing aid. Despite the taunts Mr Moore said: “I never wished for Alice not to have TC.
Even though I grew up with all the problems and complications it really didn’t bother me either way whether she had it or not. We all knew if she had it that she’d be surrounded with people who loved her whatever. There’s nothing on this planet anywhere near as special as Alice. She’s changed my life. There’s no doubt about it. She’s her dad’s little girl and I will tell her she is beautiful every day.”
Mrs Moore, 36, who has three daughters aged 10, 13 and 15 from a previous relationship, said: “We didn’t go into this with our eyes closed. We had to go through a year and a half of genetic counselling before we even decided to go ahead with trying for a baby. We knew there was no guarantee how bad the TC would be, if the baby would have it at all. It could have been as minor as a slight hearing problem, to being born with no face whatsoever. It was 50/50. Ultimately, we didn’t care if our baby had TC, we fell in love with her immediately.”
